Brave Girl Inspires Research On Rare Chromosomal Disorder | The Big Idea

Brave Girl Inspires Research on Rare Chromosomal Disorder | The Big Idea

The four-year-old suffers from a rare genetic disorder

Daniel's rare disorder

Girl inspires others with her medical journey

Brother and sister with rare genetic disorder seek match

An incredible personality: Josephine LaRoche's chromosomal disorder

Girl with rare disease finds hope in a book

Washington Post

Raising awareness for rare diseases

Coastal Bend 11-year-old with genetic disorder looking to get an adaptive bike

Dr. Beverly Searle - Unique (Rare Chromosome Disorder Support Group)

Inversion Deletion Duplication of Chromosome 8p - Project 8p Rare Disease Day

it's crazy that despite being identified and name over 137 years ago we still don't have a cure

Rare Genetic Disorders

Mount Sinai Health System

Family organizes event to raise money and awareness to rare genetic disorder

WBIR Channel 10

Ep. 1 - Project Rare Docuseries

B Brave Foundation

2009 GSK IMPACT Awards: Unique - Rare Chromosome Disorder Support Group

The King's Fund

Rare Disease Special

The Balancing Act

Beyond the Diagnosis: Rare Disease

Parents say baby with rare condition makes progress after intensive therapy

Fralin Biomedical Research Institute

Local man battling rare genetic syndrome finishes Coeur d'Alene half Ironman race